Thank you to the Omaha World-Herald for this powerful story of how medical education and process change saved a life. Thank you, Nebraska Methodist Health System, our TAD Coalition partner, for your efforts to educate your medical team on aortic dissection! Read the story here.
Tim Ealer’s father, George, passed away due to complications of an aortic dissection. Since then, Tim has learned that this disease can run in families. He spoke with a reporter about his dad and the importance of screening (aortic imaging) if you have a family history of thoracic aortic aneurysm and/or dissection. Watch the interview here: Tim Ealer on 41 Today (NBC/WMGT).
Learn more here: What Is Aortic Disease?
Many people contact the John Ritter Foundation for Aortic Health and the John Ritter Research Program looking for support groups. Unfortunately, very few currently exist. We would like to identify existing groups and facilitate new groups. If you are interested in finding a support group or know of an existing group, please complete this survey which will be available through December 3, 2013: https://docs.google.com/forms/d/1YO3sKI8Lu2V4z49kq-1fh4wfI-7XGAhaoFoM-4JmEWU/viewform
On November 3, twenty-two Team Ritter runners ran the ING NYC Marathon on behalf of the John Ritter Foundation for Aortic Health and earned Finisher medals. Although this was not the first time some of the runners had completed a marathon, it may have been the most meaningful for them. Why? Because this race was only one milestone among many during their journey to the marathon.
Over the last five months, Team Ritter’s 2013 ING New York City Marathon running team has informed hundreds of people about thoracic aortic disease by sharing their stories at health fairs, during media interviews, at fundraising events, and by talking to anyone who would listen. To date, they have raised over $114,000 so we can inform and educate the public and medical professionals about thoracic aortic disease, provide support to individuals and families affected by aortic disease, and fund research. And they have done all this while training for a marathon!
We are very proud of this team. Please join us in congratulating Team Ritter on a job well done!
HOUSTON – (Oct. 9, 2013) – Friends and family members of people with thoracic aortic disease and fans of the late legendary comedic actor John Ritter will come together as Team Ritter to raise funds for the John Ritter Foundation for Aortic Health (JRF) at the ING New York City Marathon on Nov. 3, 2013.
“We are so proud and grateful to again be one of the official charities of this year’s NYC Marathon and have the opportunity to raise much-needed funds for lifesaving research and education,” said actress, writer and aortic health advocate Amy Yasbeck, the widow of Ritter, who died from an acute aortic dissection in 2003. “Team Ritter runners are passionate about increasing awareness of aortic dissection and its risk factors and are committed to raising funds to support the JRF.”
Funds from the NYC Marathon raised for the JRF will go to the John Ritter Research Program in Aortic and Vascular Diseases (JRRP) at The University of Texas Health Science Center at Houston (UTHealth) to support research to identify genetic risks for aortic dissections. To donate, visit Edward Norton’s Crowdrise online fundraising community: www.crowdrise.com/TeamRitterINGNYCMarathon2013.
“The funds raised by Team Ritter will allow us to continue our genetic research to identify genes or altered DNA that increases someone’s risk for an acute aortic dissection. By identifying who is at risk, we can prevent premature deaths due to aortic dissections,” said Dianna Milewicz, M.D., Ph.D., director of UTHealth’s John Ritter Research Program. “It will also help us spread information to both physicians and the public about symptoms and genetic risk factors for aortic dissections, including the fact that this condition can run in families.” Milewicz is professor and George H. W. Bush Chair in Cardiovascular Research in the Division of Medical Genetics at the UTHealth Medical School.
Fundraising Websites – Crowdrise
Read more and meet the team:
Survivors of Aortic Dissection Support Group Meetings Scheduled in Ridgewood, New Jersey in October and December 2013
It can be difficult to find others to talk to who understand what an aortic dissection survivor has been through. The John Ritter Research program is pleased to pass along information about future group meetings that a Nurse Practitioner has organized in New Jersey. (more…)
HOUSTON – (Aug. 7, 2013) – A multi-institutional team led by Dianna Milewicz, M.D., Ph.D., of The University of Texas Health Science Center at Houston (UTHealth) has found a recurrent genetic mutation that has been linked to deadly thoracic aortic dissections in family members as young as 17 years of age.
The gene known as PRKG1 makes a protein called cGMP-dependent kinase, type I. The PRKG1 mutation alters the function of the protein and causes the muscle cells in the wall of the aorta to respond incorrectly to pulsatile blood flow from the heart, and the change in this one protein ultimately causes thoracic aortic aneurysm and acute aortic dissection. The mutation was identified in four families, including three in the United States. The majority of the affected family members suffered acute aortic dissections at young ages (17 to 51 years). (more…)
It can be difficult to find others to talk to who understand what aortic disease is like. The John Ritter Research Program is pleased to pass along information about a support group meeting organized by a survivor of aortic dissection in Michigan. Everyone that has been affected by aortic disease is welcome to attend and support each other. Here are the details: (more…)
Survivors of Aortic Dissection Support Group Meeting Scheduled in Ridgewood, New Jersey, on June 11, 2013
It can be difficult to find others to talk to who understand what an aortic dissection survivor has been through. The John Ritter Research Program is pleased to pass along information about a group meeting that a Nurse Practitioner has organized in New Jersey. Here are the details:
A support group meeting for survivors of aortic dissection is scheduled to take place in in Ridgewood, NJ at The Valley Hospital on Tuesday, June 11 from 5:30 – 7:00 p.m. Eastern time.
For more information or to see how you can be involved, please contact Andrea Storper, NP, at 201-447-8418 or firstname.lastname@example.org.
This is your chance to paint your own masterpiece and raise money to support efforts to increase awareness and genetic research on thoracic aortic aneurysms and dissections. How cool is that?
This event will honor the memory of Cliff Klein and the positive impact he had on many people’s lives. We thank Sarah Jurica for organizing this and for her support of the John Ritter Foundation.
Date: Saturday, April 13, 2013
Time: 4:00 p.m. to 6:00 p.m.
Location: Saratoga Paint & Sip Studio, 80 Henry Street, Saratoga Springs, NY 12866
Click here to register: https://www.saratogapaintandsip.com/calendar/john-ritter-foundation-fundraiser/