The second annual Sofia Gutierrez Brain Aneurysm Awareness Fund Raiser Event will be held from 11 a.m. – 8 p.m. on Saturday, November 10, at the Orange Park Mall in Orange Park, Florida (20 miles south of Jacksonville). Here is the very touching story of the Gutierrez family’s motivation to find answers about cerebral aneurysms: Family warns parents about condition that killed daughter.
The event will benefit the John Ritter Foundation for Aortic Health, and all funds raised will go to the Sofia Alejandra Gutierrez Brain Aneurysm Research Fund to support research the John Ritter Research Program in Aortic and Vascular Diseases (JRRP) at the University of Texas Health Science Center at Houston (UTHealth) is doing on the genetics of cerebral aneurysms. The Director of the JRRP, Dianna M. Milewicz, MD, PhD, will attend and be available to answer questions about the genetics of cerebral and other vascular aneurysms.
The event will feature the Clay County Fire Department, Shands Hospital Trauma One Helicopter, bounce houses, live entertainment, silent auction, door prizes, vendors, and much more.
If you’re in the Orange Park area and looking for something fun for the family to do, come on out!
Gene Defect for New Syndrome Discovered – Systemic Complications Include Life-threatening Thoracic Aortic Disease
HOUSTON – (July 9, 2012) – Research teams from The University of Texas Health Science Center at Houston (UTHealth) and Paris, France have discovered a gene defect linked to a cluster of systemic complications, including life-threatening thoracic aortic disease and intracranial aneurysms. The new syndrome is similar, but distinct from known syndromes such as Marfan and Loeys-Dietz syndrome. (more…)
The community really turned out to support the Gutierrez family for this event. Local businesses sold products and food, offered wellness checks and flu shots, and sponsored fun activities for kids. The Blood Alliance was there accepting blood donations, and the fire department was on hand with fire engines, including a pink engine supporting breast cancer awareness and signed by hundreds of people. A local helicopter emergency service got a lot of attention when it flew in and landed nearby for people to view. There was an honor guard, a children’s choir, a live band, and a luminary ceremony. A silent auction was also held. All proceeds benefited the Sofia Alejandra Gutierrez Brain Aneurysm Research Fund at the John Ritter Research Program at the University of Texas Health Sciences Center in Houston.
Thank you, Monica and Omar Gutierrez, for planning and organizing this event, for your support of the research being done on intracranial aneurysms at the John Ritter Research Program, and for your tireless commitment to increasing public awareness that some individuals may be predisposed to these aneurysms based on their family history.