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Survivors of Aortic Dissection Group Meeting Scheduled in Ann Arbor, Michigan on April 22, 2013

Posted on Friday, April 5th, 2013, by with Comments Off

It can be difficult to find others to talk to who understand what an aortic dissection survivor has been through.  The John Ritter Research Program is pleased to pass along this information about a group meeting that one survivor has organized in Michigan.  Here are the details:

Chris Kasper (chriskasper17@gmail.com) has organized a support and informational group meeting for survivors of aortic dissection, their families, and their caregivers to take place in Ann Arbor, Michigan on Monday, April 22, 2013, from 10:00 a.m. to 12:00 p.m. Eastern time.  The meeting will be held at:

University of Michigan

EAA Health & Geriatrics Center

Room B1-407

4260 Plymouth Rd.

Ann Arbor, MI 48109

There are three buildings which make up this “campus”.  The building where the meeting will be held is the one in the center.  When you enter the building, take the elevator to level B1.  Exit straight out of the elevator and go through a set of double doors to the left of Java city.  The conference room is B1-407 and will be on the right side of the hallway across from the patio.  Please contact Chris directly at chriskasper17@gmail.com with any questions.  

A subsequent meeting is being planned for July 22, 2013 in the same location.  Chris is hoping to make this a quarterly event.

Thank you, Chris, for sharing this information with us and for providing survivors with an opportunity to meet and talk!


Meet Edward M. Cooning IV of Team Ritter

Posted on Sunday, October 28th, 2012, by with Comments Off

Edward M. Cooning IV will be one of 15 individuals running to raise money and increase awarenesss of thoracic aortic disease for the John Ritter Foundation for Aortic Health (JRF) at the ING New York City Marathon on Nov. 4, 2012.  Funds from the NYC Marathon raised for the JRF will go to the John Ritter Research Program in Aortic and Vascular Diseases (JRRP) at The University of Texas Health Science Center at Houston (UTHealth) to support research to identify genetic risks for aortic dissections. 

Meet Ed: 

Six years ago, when Jonathan “Jonnie” Miller died suddenly of a thoracic aortic dissection as a result of suspected undiagnosed Marfan syndrome, Edward M. Cooning IV and fellow friends formed Jonnie’s Goodguys in his honor. Miller had planned to run the One America Mini Marathon in Indianapolis that year and his goal became their goal. The small group, committed to elevating awareness of Marfan syndrome, has grown into an organization that has raised nearly $2,200 for the National Marfan Foundation. It also donates to other charities and coaches new runners through training. This year, Cooning, 38, launched My Heart Run 2012 with a personal goal of running the five world major marathons in 2012, including the ING New York City Marathon. “It’s the goal of Jonnie’s Goodguys to educate and generally live a healthier lifestyle so that we are all around a little longer with our loved ones,” Cooning said.

Text RITTEREC to 41444 to donate $10 (or specify a different amount in the text message) to JRF to support Ed’s run. Or donate online: http://www.crowdrise.com/emciv.

Read the full press release here.

Deborah Mann Lake, UTHealth Media Relations
Media Hotline: 713-500-3030
 
                                                            
http://www.ingnycmarathon.org/                                                              http://www.nyrr.org/


Meet Jed Nuchtern, M.D., of Team Ritter

Posted on Sunday, October 28th, 2012, by with Comments Off

Jed Nuchtern, M.D., will be one of 15 individuals running to raise money and increase awarenesss of thoracic aortic disease for the John Ritter Foundation for Aortic Health (JRF) at the ING New York City Marathon on Nov. 4, 2012.  Funds from the NYC Marathon raised for the JRF will go to the John Ritter Research Program in Aortic and Vascular Diseases (JRRP) at The University of Texas Health Science Center at Houston (UTHealth) to support research to identify genetic risks for aortic dissections. 

Meet Dr. Nuchtern: 

As a pediatric surgeon who has treated individuals with aortic disease, Jed Nuchtern, M.D., will be running the New York City Marathon in honor of the founder of modern aortic surgery, the late Michael E. DeBakey, M.D. DeBakey pioneered the surgical procedure for repairing aortic aneurysms—a procedure that saved DeBakey’s own life when his aorta dissected at age 94. “I have taken care of many children and adolescents with Marfan syndrome and would like to help raise money for research of aortic disease,” Nuchtern, 56, said. Marfan syndrome is a connective tissue disorder that can lead to aortic dissection. Nuchtern started running while in college at Princeton and has nine marathons under his belt, but this will be the first New York Marathon for the native New Yorker. “I enjoy distance running because of the meditation and because it is so different from my daily work,” he said. “Living in Houston, the best time for me to run is before work. I enjoy being out on the roads when they are empty and getting into my groove. I enjoy running a marathon the most when I am on a team, so this is a great opportunity for me.”

Text RITTERJN to 41444 to donate $10 (or specify a different amount in the text message) to JRF to support Dr. Nuchtern’s run. Or donate online: http://www.crowdrise.com/TeamRitterNYCMarathon2012/fundraiser/JedNuchtern.

Read the full press release here.

Deborah Mann Lake, UTHealth Media Relations
Media Hotline: 713-500-3030
 
                                                            
http://www.ingnycmarathon.org/                                                              http://www.nyrr.org/


 


 

 

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